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AfriGeneas Free Persons of Color Forum

Re: Nosey girl! or Ancestor Quest
In Response To: Nosey girl! ()

I wish I had been nosey as a child, it would help me now. My quest began when I learned in 1999 that my grandson had inheirited a defective gene that causes Primary Immune Deficiency. That same year, my great-nephew, two weeks older than my grandson died from the disease. As a child, I remember my grandmother relating with sadness that all six of the boys she gave birth to died in early infancy. While growing up, I lost one little brother and five little male first cousins. My aunt, mother of two of the little boys, had been told about the disease, but did not share the information, to this day, she does not believe it and three of her grandsons have the deficiency. I currently have a grandson, three first cousins and a great-nephew living with the deficiency. My family research began because I wanted to know why and what happened to cause that errant and deadly gene. The boys affected take a monthly infusion of antibodies intraveniously because their bodies do not make antibodies to fight infections which cause them to be chronically ill. The deficiently is deadly without the treatments, right now, the treatments are for the rest of their lives.

I still have not found a cause of the defective gene, but I have found so much information about my family that I am simply amazed at the heretofore unknown struggles and sufferings of the ancestors that we, their descendants have overcome. I wonder if we are living the lives they envisioned for us -- I hope they see us NOW and know that their struggles were not in vain.

Alice

(Sorry for the length, but you got me started.)


18 Dec 2002 :: 14 Nov 2008
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