Not too lengthy at all, Ms. Stewart. I had never heard of this disease, and after having read your post, I did a search on it. You know, we mostly hear about Sickle Cell, and I was very surprised to see all the hits that googled gathered on it. I admire you for your strength, and tenacity to gather and equip yourself with information in order to help your family fight this disease. In gathering the genealogy, you are providing your family with the history they need to help conquer it. Many blessings to you and yours.